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Polymyalgia Rheumatica and GCA

Also known as GCA - Giant Cell Arteritis, Temporal Arteritis

Can you help? Discussions needing a reply

  • Vitamin K2 to help guide the calcium to your bones!

    Speaking from my experience only, I read about Vitamn K2 to help with bone loss and understood K2 helped get the calcium into the bones. Some research indicated without this the calcium got a bit lost. I've explained it in simple terms but that's my understanding. Like us all on this forum …

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  • Stiffness in legs

    i was diagnosed 17moths ago. I have been reducing slowly I am on 8mg at the moment, I was told that my shoulder problems were Rotato cuff problem since then have been having physio which has helped. My problem is getting up,after sitting down I am very stiff mostly in my legs. Once I am up I am ok …

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  • Prednisolone and sleep deprivation

    I've only been on this tablet for 2 weeks (prednisolone 20 mg) as a prelude to an 18-months course after being diagnosed with Polymyalgia.  I feel terrific: all the pain, stiffness and discomfort has gone, but I am only sleeping for 3-4 hours per night (am I the new Maggie Thatcher?!)  …

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  • Horrible Muscle Spasms!!

    Ever since my dx of pmr, I've been experiencing. horrible muscle spasms, (and I do mean HORRIBLE!) in my back, my legs and even my abdomen! Is this yet another symptom of pmr or am I just NUTZZZ? (cuz that's how I'm feeling lately)! Ever since my dx, my symptoms have been growing …

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  • NO ACCESS TO A RHEUMATOLOGIST, BUT COULD THESE BE THE SIGNS OF PMR?

    Hello, I'm in need of some evaluation, opinions and general feedback from experienced sufferers of PMR. I'm a 66-year old male of Scottish/Irish descent, and several years ago, I started experiencing increasingly severe bouts of stiffness in the neck, shoulders, and backsides of the upper …

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  • Flare on Reducing Pred (or perhaps not)

    Husband (PMR+GCA) has reduced Pred from 40mg pd to 35mg pd over the past 3 weeks . ( roughly the 10% guidelines on GP instructions). He came home this evening complaining of backache and unilateral knee pain - wondering if it was because of reducing the pred. Prior to the onset of PMR symptoms he …

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  • Vitamin K2 etc.

    Been doing a bit of wombling round nutrition wesites etc. A few quotes "Vitamin K2 is mainly found in meat, egg yolk, liver, butter, hard cheese, soft cheese and natto" (Not sure about trying Natto though - apparently somewhat smelly fermented soy beans) "Cheese contains the …

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  • Awful tooth aches!!

    ...hi again It's Lynda. Does anyone else out there experience terrible toothpain, painful jaws, and gum pain? I went down on prednisone today from 9.5mg to 9mg. Now I'm experiencing the forementioned in a very big way! I have a couple of cavities (major dentist phobia, and I mean MAJOR!), …

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  • Need advice on taking alendronate

    I know this is a PMR group and not an osteoporosis group but I've heard a lot of people talk about this medicine in this group. As some of you may recall I had a pretty bad fall last February where I broke my left ankle in 3 places and sprained my right ankle. I have had lower back problems for …

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  • MTX yay or nay

    Koen, Well what an interesting post you have given, makes me think more about the fact 40% can see real benefits with mtx. Then again I am on a low dose of Pred. so as suggested by Eileen "if and when it causes side effects, is it worth it for the sake of a few mg." My better half …

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  • Vitamin K2 to help guide the calcium to your bones!

    Speaking from my experience only, I read about Vitamn K2 to help with bone loss and understood K2 helped get the calcium into the bones. Some research indicated without this the calcium got a bit lost. I've explained it in simple terms but that's my understanding. Like us all on this forum …

    Posted
  • Which Pain is Which?

    I've started a new thread as Kate's original question re PMR or old back pain has had lots of replies and I feel my experience/query, although in some ways similar will make it all a bit unwieldy and some of what I want to say is irrelevant to the original post. I must have had osteo …

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  • Poison oak/ivy reaction and PMR/Steroids?

    Maybe be an odd question but here goes. I had to cut up a fallen tree last week which was entangled with poison oak or ivy vines.  I developed a terrible rash on arms/legs within 24 hours which has been more severe than ever before.  I have used the usual topical remedies and tried adding …

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  • Veins have appeared on my chest

    Suddenly 2 days ago lots of large blue veins appeared on my chest, one running across the left side more or less from my shoulder across my clavicle and down a bit. But lots appeared on my breasts. They were there in the evening and much less visible in the morning. Back again at night tonight …

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  • No longer receiving emails

    A couple weeks ago I stopped receiving emails from this group.  I reset all my settings but it hasn’t helped.  Anyone else have this problem?  Thank you!

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  • Is this PMR flare or old back pain problem? I don't know what to do.

    For the last week or so I have a lot of pain in my pelvic region and this morning I can barely walk.  As I have a long history of back problems, known as failed back surgery I just don’t know what sort of pain I have!! About a month ago the back pain and PMR  were nicely under control …

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  • Painful wrist is this part of GCA, PMR Fibromialga.

    Well I've got myself to 10mg pred had a bad last 2 weeks with chronic fatigue worst ever had but couple of days ago woke up feeling great smiling from my inner self if that makes sense. Any now I have woke with a really sore left wrist I mean painful can't turn I've put one of those …

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  • benefits of Methotrexate

    I am hoping there are a few people on this Forum who could advise me as to begin taking Methotrexate, or not. It was put to me to possibly try this method to be able to get me off Prednisone. I remember reading about people on this Forum who are on it, or have in the past used it. I did some …

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  • Blood test for PV - Polycythaemia - why?

    Wise & wonderful people here - I have more questions!  I had to go for blood tests today and now that I'm more jenned-up about PMR, blood tests, etc., I asked the nurse what my previous (first) blood test results were - fully expecting them to be for ESR & CRP. But apparently I …

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  • Cant get below 20mg

    I have PMR since Sept. 2017. I cant get below 20mg pred. I have tried 2 times 2 1/2mg the first time, then 2mg the second time. C Reactive Protien we t up both times to 3.3. and pain came back both times. What do you all think j I should do? I really want to lower my Pred. because I have …

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  • Polymyalgia Rheumatica

    Two fingers in my right hand and one in my left are swollen, misshapen and extremely painful. Does anyone have experience with compression gloves for pain relief?

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  • What exactly do blood tests show?

    I've been on 15mg pred for 3 weeks now (PMR). I have an appointment for a blood test on 20th August, and a phone appointment with a GP on 21st - I assume to discuss reducing the pred. I assume the blood test will be to check for ESR and CRP levels - but what exactly are they?! I know vaguely …

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  • Anybody taking hydrocortizone steroid instead of prednisone?

    I saw my regular dr yesterday and she said I simply have to get off the pred. because I am still gaining weight.  I tried for a month to eat well, and I went to the dr thinking I had lost at least a pound.  No, I had gained 9 pounds, three pounds from 300!  So yesterday and today I …

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  • pmr flare up after holiday

    I was diagnosed with pmr last October after having symptoms for 2 months. I am a very fit and active person, my passion is hillwalking and climbing and the diagnosis was a big shock to me. However I reacted really well to a starting dose of 15mg of Pred and was able to (cautiously at first) resume …

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  • A great year

    Last year after suffering a very bad flare I was depressed and sedentary. EileenH and others motivated me to get moving. I did 1/6 of a mile then 1/3, 2/3 finally a mile. It was very slow progress, as I hobbled along with my cane, I worked at it. I was ready for skiing. I didn't ride my bicycle …

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  • Why was my PMR related discussion deleted?

    Apparently something was said by me that was not allowed. I read over all the terms and conditions and can’t figure out what I said that was not allowed. I really like being on this forum and would really appreciate an explanation as to what I did wrong. A private email is fine but you are welcome …

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  • More "weird" side effects!

    Has anyone out there experienced a feeling of muscles turning to spaghetti? Almost overnight I feel my fat has turned wiggly and jiggly and has slipped away from my bones. Am I alone in this phenomenon? Another weird side effect of this whole pmr/prednisone situation?

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  • Methotrexate

    i am on mtx forRA , I also have pmr. i do sometimes think am I doing the right thing by taking both. at the moment I had to miss my weekly mtx as I have a kindney infection, and I must say I am suffering more with RA than pred at the moment, but last week I could have said my pmr was worse, and I …

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  • Antibiotics and PMR

    I have had PMR for about 2 years and I'm currently taking 11mg of methylprednisolone. Have had problems in the past getting below 10mg. I unfortunately ran into a dental infection last week and was placed on Amoxicillin. During this time I have found that my PMR symptoms have improved and I' …

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  • Off the wall side effects??

    This probably is gonna sound insane, but has anyone out there experienced some very strange, nondescript type of side effects from prednisone? ie interior of mouth feeling very hot and sorta tender? Also, numbness/tingling in feet and hands? Pls. let me know. I'm feeling like a hypercondriac!

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  • GCA

    i have just been diagnosed with GCA - should I rest more with this condition or carry on as usual 

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  • Questions about PMR

    I am new to this group and asking quite a few questions for my husband. In the end of May, he started to experience pain in his shoulders and groin. It was so uncomfortable that he couldn't sleep at all. This has lead to 5 general practice doctors visits, 2 MRIs, an X-Ray, an EMG, an orthopedic …

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  • My PMR seems like a life sentence.

    I've had PMR for about 5 years now. I've tried several times over those years to decrease my use of prednisone, but can't seem to get below 2-1/2mg. I took myself off prednisone for a couple of weeks and had to start back two days ago; however I don't think 2-1/2 is enough of a …

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